Party for sufferers of rare syndrome

A CHARITY Christmas party for sufferers of a rare syndrome came together from all over the country in Boston Spa last week.

The event, which was organised and sponsored by the Boston Spa and Tadcaster Round Table Men’s Forum, saw Prader-Willi sufferers from across the UK team up to enjoy the festive celebrations at Deepdale Community Centre together. After Christmas lunch, guests enjoyed a range party games and activities including balloon modelling, dancing and party tricks from a children’s entertainer.

Leigh Vallance, director of Prader-Willi Syndrome UK, said: “We are most grateful to the Boston Spa and Tadcaster Round Table for their wonderful support which enabled us to organise the event. Living with a rare syndrome such as Prader-Willi can be very isolating indeed and this party gave those with the syndrome the invaluable opportunity to get together with their friends and families for an afternoon of fun and laughter.”

Prader-Willi syndrome Association is a charity that funds research and provides assistance to the families of children with Prader Willi, a rare incurable genetic disorder that affects many parts of the body, including growth and learning development. It currently affects one in 30,000 children worldwide.

Further information about Prader-Willi syndrome can be found at www.pwsa.co.uk or contact Leigh Vallance on 01332 365676.